Services

Welcome to the Family Resource Center: Managing Your Child's Condition Section

This section provides information that can be very useful in managing your child's condition over the long term, in four tables:

Table A below focuses on Parenting Skills and Managing Challenging Behaviors, including information on Positive Behavior Support, which can help your child with special needs and your entire family have a better quality of life
Table B below focuses on Assistive Technologies and other supports that can help your child learn, interact and perform activities of daily living more easily and effectively
Table C below focuses on Medical and Clinical Therapies for children with special health care needs
Table D below focuses on Respite services to allow your child with special needs, his or her primary caregivers, and the entire family a restorative break

Scroll to the table you need and click on the links below to access the information each resource provides.

PLEASE NOTE: Information on Parent and Family Support Organizations is found in the Special Needs Essentials section.

If you know of additional resources that provide valuable information in this area, please email us at learning@medhomeplus.org so that we can include these resources in this database.

Table A: PARENTING SKILLS / MANAGING CHALLENGING BEHAVIORS

Organization	Link	What You'll Find There
Center for Effective Collaboration and Practice	http://cecp.air.org/	Information on emotional and behavioral problems with focus on ideas that work in education, functional behavior assessment, early intervention and other topic areas
Center for Evidence Based Practice	http://challengingbehavior.fmhi.usf.edu/index.html	Young Children and Challenging Behavior provides information on evidence-based practice to help young children with behavior problems
Center on Positive Behavioral Interventions and Supports	www.pbis.org	Information on what works in preventing challenging behaviors
Center on Social and Emotional Foundations for Early Learning	http://csefel.uiuc.edu/whatworks.html	What Works Briefs, which summarize effective practices for supporting children's social-emotional development and preventing challenging behaviors
Center on Social and Emotional Foundations for Early Learning	http://csefel.uiuc.edu/modules.html	Training modules on classroom preventive practices and individualized interventions to determine the meaning of challenging behavior and develop a behavior support plan
Center for Exceptional Children	http://www.cec.sped.org/AM/Template.cfm?Section=Publications1	Excellent set of publications available online on topics such as inclusion, assistive technology, assessment, ADD, autism, behavior management, IEPs, IDEA, and transition
Independent Life Resources	http://www.ilresources.com/ResourcesCare.htm#Parenting	A directory of over 50 resources and organizations that can help parents with children with special needs to develop successful parenting strategies
NICHCY	www.nichcy.org/resources/behavschool.asp	Very comprehensive resource page dedicated to improving behavior at school, including positive methods, behavior and specific disabilities, and what the law requires
Parent to Parent	http://www.ptpofva.com/4-resources.html	Chapters 6 and 9 of the Care Coordination Notebook provide excellent information on building effective communication skills
Special Olympics Virginia	http://www.specialolympicsva.com	A year-round program of sports training for children and youth with intellectual disabilities
Technical Assistance Alliance for Parent Centers	www.taalliance.org/research/discipline.htm	Broad range of authoritative studies on best practices in discipline and positive behavior supports
University of Oregon	http://www.uoregon.edu/~ttobin/	Excellent website providing information on Functional Behavior Assessment and Positive Behavior Support
US Office of Special Education Programs (OSEP)	http://www.pbis.org/	National Technical Assistance Center on Positive Behavioral Interventions and Supports, providing an extensive set of articles, presentations, video clips and other materials on positive behavior support

Table B: ASSISTIVE TECHNOLOGIES AND SUPPORTS

Organization	Link	What You'll Find There
ABLEDATA	http://www.abledata.com/	Information about assistive technology products and equipment
Center for Assistive Technology and Environmental Access	http://www.assistivetech.net/	Assistive technology website providing a searchable database of solutions and AT products
Council for Exceptional Children	http://www.cec.sped.org/AM/Template.cfm?Section=Publications1	Excellent set of publications available online on topics such as inclusion, assistive technology, assessment, ADD, autism, behavior management, IEPs, IDEA, and transition
Kids Together, Inc.	http://www.kidstogether.org/reauthorization_of_idea.htm	Kids Together is a nonprofit organization providing information for children and adults with disabilities, including information on assistive technology and other special ed topics
Sanilac Intermediate School District, Peck, Michigan	http://www.sanilac.k12.mi.us/Special Education/Special_Education_Resources.htm	An excellent directory to online resources and organizations focused on assistive technologies and supports and other special education topics
Special Education Resources on the Internet	http://seriweb.com/	A collection of information resources of interest to those involved in the fields related to Special Education, including special needs technology
TecAccess	http://www.tecaccess.net/index.shtml	Private sector company providing accessibility and workforce development consulting
Trace Research and Development Center	http://trace.wisc.edu/	A broad range of information and links on assistive technology
Two Little Hands Productions	http://www.signingtime.com/	A wide range of information and educational materials on sign language and its benefits for children with normal as well as impaired hearing, in addition to children with other conditions that may interfere with verbal communication
Virginia Assistive Technology System	www.vats.org	Information on assistive technology and how it can help your child with special needs
Virginia Assistive Technology Loan Fund Authority	http://www.atlfa.org/	Information on how to get assistive technology services for your child

Table C: MEDICAL / CLINICAL THERAPIES

Organization	Link	What You'll Find There
Kennedy Krieger Institute	http://www.kennedykrieger.org/	Kennedy Krieger Institute treats children and adolescents with developmental disabilities including autism, cerebral palsy, behavioral, neurological and genetic disorders, traumatic brain injury, learning disabilities, and more. Their website offers information on a broad range of diagnoses.

Table D: RESPITE SERVICES

Organization Link What You'll Find There

Kidz Clubhouse www.kidzclubhouse.org A weekend respite care and summer camp

National Respite Locator www.respitelocator.org Online source for respite programs

Professional Education and Respite Service http://www.vacationrespite.com/ This company provides a variety of in-home services for children and adults with moderate cognitive impairments, autism and severe behaviors, including vacation respite services for families across the United States

Respite Resource Project http://www.vcu.edu/partnership/respite.html Information about and support for respite services, including resource information and a summer camp guide